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In recognition of Severe ME Awareness Day on August 8, 2021, Open Medicine Foundation (OMF) is taking this month to share stories from people living with severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) to increase the visibility of this devastating disease.
Approximately 20 million people suffer from ME/CFS globally. It is estimated that 25% of these people with ME/CFS are severely ill. Many cannot leave their beds, and in some cases are tube fed, unable to care for themselves.
To date, there are no FDA-approved treatments or a cure for ME/CFS. Those severely affected can be confined to bed for years on end, disappearing from the world outside. As many people with severe ME/CFS live inside one room, the view stays the same day in and day out.
Read an illuminating account of severe ME
written by severe ME patient Whitney Dafoe.
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