We are reaching out to invite those of you who would like to participate in research studies to join StudyME, a free global participant registry proudly launched by Open Medicine Foundation (OMF) in April 2023. This innovative recruitment tool is designed to bridge the gap between individuals living with ME/CFS, Long COVID and related diseases, and the researchers working tirelessly to uncover effective treatments and solutions.
Key Insights About StudyME
OMF’s StudyME has registered more than 11,600 participants across 61 countries and is currently recruiting for 13 studies, highlighting the global urgency for research in this field.
The demographic data – unsurprisingly – reveals a pronounced sex disparity with a notable 5:1 ratio of female to male participants, primarily aged 25 – 55.
Preliminary insights from the registry highlight the profound impacts of these conditions on everyday life. Participants have indicated that they are interested in research on the following areas:
Amplifying Participant Voices
The goal of StudyME is to amplify the voices of those with lived experience of these debilitating conditions. It is our firm belief that the path to groundbreaking discoveries and meaningful advancements in treatment lies in ensuring that people with ME/CFS and Long COVID are not only heard but are also active participants in the research.
Accelerating Research
Participant recruitment is often one of the most time-consuming stages in the process, creating lengthy delays that can hinder progress. StudyME directly addresses this challenge by facilitating a direct and efficient link between potential participants and research teams. This not only accelerates the pace of research but enhances its quality and relevance, promising sooner breakthroughs that can transform lives.
Will You Help Us Accelerate Research?
Signing up is easy and takes less than five minutes. All you need to do is to provide your contact details and specify your areas of interest. No personal medical information is required.
Donate your appreciated stock directly to OMF and you can receive an immediate income-tax deduction for the fair market value of the securities on the date of transfer (even if you originally paid much less for them).