Search
Close this search box.

More Details about the New NIH Effort on ME / CFS

Is this the new home for ME / CFS? Cort's report explains.
Is this the new home for ME / CFS? Cort’s report explains.

We can trust Cort Johnson to get access to movers and shakers in the ME / CFS world and break down news into easy-to-understand words. In his most recent report, he also finds out more details about the NIH announcement of increasing ME / CFS research efforts.In the lengthy piece, Cort tells of our conversations with NIH in trying to bring this change: “Meanwhile, Ron Davis collared Francis Collins at a meeting several months ago and got agreement that something needed to be done. They’ve been in touch ever since.”

In reference to the NIH study to be conducted at their hospital, Cort says: “The study clearly got it’s genesis from Ron Davis’s End ME / CFS project. Davis and Linda Tanenbaum met several times with NIH officials in an attempt to secure funding for their intense examination of ME / CFS patients. NIH officials were reportedly gratified by the brain-power Davis had enlisted in his project but funding was denied by NINDS. Now the NIH has turned around and is doing a similar project . . . .”

Some have asked us if we will continue our ME / CFS Severely Ill-BIG DATA Study. The answer is yes, and we explain how it’s different from the NIH initiative in this post.

There’s been confusion about whether ME / CFS will now have an institute “home” in the National Institute of Neurological Diseases and Stroke. Cort’s report attempts to get to the bottom of that confusion.

He also gives some historical context that can reveal how ME / CFS research will now be different at the NIH.



Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.


How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669