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For Ron Tompkins: I live in Cambridge, MA. Is there (or will there be) a clinic at your site where those of us already diagnosed (I’m 72 and have had this illness for 53 years) can see an ME informed doctor for care? Might there also be a social services person on staff (or to visit the more severely ill) to help us organize appeals for medication, care, services and housing? Too many of us (especially those who weren’t diagnosed early) waited too long to ask for help while we reduced our working hours over the years. This decimated any benefits we might have been eligible for if we’d been better informed earlier.

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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