On August 8, Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Day, Open Medicine Foundation asked our community to share photos and short bios that capture the reality of life with this complex and devastating disease. Persons with severe ME/CFS are often so ill that they are bedbound for 24 hours a day, confined to one room for years on end. Stuck between four walls, the view stays the same day in and day out.
People living with #SevereME and their caregivers have submitted pictures of their daily views from around the world that can now be viewed online at #TheViewforME Gallery. (Hover over the image to learn more about the person behind the view).
The View for ME project is an effort to increase the visibility of those who are bedbound or homebound from severe ME and demonstrate the urgent need to fund research to find treatments and a cure.
We hope #TheViewforME project serves as a reminder:
You are not alone, and you are not forgotten. At OMF, we will continue to amplify your voices, and we will never give up on our mission to find treatments and a cure.
OMF sends heartfelt thanks to all who sent in submissions, helping us raise awareness of #SevereME.
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