Today is Long COVID Awareness Day — a moment to pause and acknowledge the reality facing hundreds of millions of people worldwide. Long COVID is not a disease fading into the past. For many, it is a daily struggle with no clear end and no approved treatment in sight.
At Open Medicine Foundation (OMF), we are committed to understanding these chronic complex multisystem diseases and accelerating research toward effective treatments.
THE SCALE OF THE CRISIS
- 400 million+ people are affected by Long COVID worldwide
- $1 trillion of annual global economic impact
- Only 7–10% of people are fully recovered after 2 years
- 6 million children in the US have Long COVID
- No diagnostic test. No FDA-approved treatment. No cure.
- Long COVID affects men, women, and children too.
OMF RESEARCH: DRIVING ANSWERS
These numbers represent real people. OMF is determined to find answers for them. We currently support a broad portfolio of studies that include Long COVID cohorts:
- Multi-Omic Approaches to Solve Post-Acute COVID-19 (MOSAIC)
- Tracking Hormone Fluctuations in ME/CFS (MELLOW)
- Crash-Course: Studying PEM in ME/CFS, PTLDS, Long COVID
- Personalized Treatment Trials
- Blood Flow, Neuroinflammation, and Metabolism in ME/CFS
- Search for Viruses, Parasites, and Bacteria in ME/CFS
- Network Medicine to Identify Disease Mechanisms & Treatments
- iCPET Retrospective Study of ME/CFS and Long COVID
- Investigating PEM via Muscle Biopsy in ME/CFS and Long COVID
- Sleep Disturbance in ME/CFS and Long COVID
- Long COVID Clinic Studies
- Targeted Markers of ME/CFS and Post-COVID
- Genetic and Metabolic Markers of BH4 Deficiency in Long COVID
BE PART OF THE SOLUTION: JOIN OMF STUDYME
OMF StudyME is a free global participants registry designed to connect individuals interested in participating in research studies with the researchers conducting them.
It is our firm belief that the path to groundbreaking discoveries and meaningful advancements in treatment lies in ensuring that people with Long COVID are not only heard but are also active participants in the research.
Thank you for being part of our mission— not just today, but every day.
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