Assent and consent are both critical pieces of ethical conduct of research and involve a person acknowledging that they understand, to the best of their ability, what is involved in participating in a study. The difference between them lies in who is giving it: an adult with the mental capacity to understand the information presented to them consents to participate, but a person who isn’t legally able to consent (e.g., a minor) will assent to participate.
The most prominent use of assent is in pediatric research. Studies involving children are incredibly important in ME/CFS, but they are also quite challenging to conduct and are therefore relatively rare.
At OMF’s Melbourne ME/CFS Collaboration, they are conducting a pediatric study, which involves both assent from the teenage participants and consent from their legal guardian. Read more about the Serial Pediatric Omics Tracking for ME/CFS (SPOT-ME) project here.
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